Haemophilia

Haemophilia is a genetic bleeding disorder where an essential blood clotting factor is either partially or completely missing. Predominantly affecting boys, haemophilia can be severe, moderate, or mild based on the level of clotting factor in the blood.

Tiara provides life-saving anti-haemophilic factors free of cost to improve the quality of life of affected children. We also provide scholarships to build a bright future for these children raise awareness among the community to enhance social integration.

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A study across five haemophilia clinics in the country found that disability rates were higher and more prevalent among those belonging to a low socio-economic status.  In India, genetic disorders like this are not considered public health priorities, leading to severe living conditions for those affected and their families by this disorder.

Challenges of Haemophiliacs 

Multidisciplinary Clinic for Haemophilia Warriors

 

Children with haemophilia, called our H-warriors, need to be closely monitored with plenty of follow ups to ensure a good quality of life. We organize multidisciplinary clinics to provide doctors and parents with an opportunity to meet and update each other on the progress of our little H-warriors. These clinics have haematologists, orthopaedic specialists, and physiotherapists to provide all-round care. Parents can bring up concerns or questions and doctors can then help them understand and adapt better. 

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Impact of Haemophilia Programmes

Tiara Haemophilia and Cancer Foundation

-Health equity for all children in India

Address:

 REG OFFICE: 202, 2nd floor, Tropical's Ashrama, 7/2 Krishnaswamy Avenue, Mylapore, Chennai - 004

VHS SAMHITA: Abhimanyu Block, Voluntary Health Services, SH49A, Pallipattu, Tharamani, Chennai-113